Multiple Sclerosis and Constructions of Shame: The End of “High Heels”

We make many assumptions about what it feels like to live with MS because of the limitations of this medical discourse. For example, the deterioration of the myelin sheath doesn’t communicate what it feels like to lose control of one’s bladder unexpectedly or to be unable to wear high heels anymore. In other words, individuals living with MS, like my mother, are forced to inhabit the world as if they are not social and political beings. This is what my paper attempts to address and give language to, the emotional experiences of a personally disabling disease as social and political.

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